Thursday, 11 March 2010

Under Pressure

I usually thrive on pressure, at least I did BC (Before Children), but now I am not so sure. 

I think maybe I was being optimistic about looking for a part time job, as it seems that mum is not going to get back on her feet so easily this time and it looks as though I am going to have to spend more time looking after her as well as the children.

What the Consultant has said is that she has permanent lung damage due to smoking and also the latest chest infection and reduced her respiratory ability too.  They officially  call it Type 2 respiratory failure or COPD.  In the olden days it would have been called smokers lung or emphysema.  In all honesty I wish they would have called it either of them with mum when she was first diagnosed as it may have spurred her on to quit smoking before now, which is too little too late.

She also has been diagnosed with anemia, which is obviously not helping with her oxygen stats, so has had a number of scans.  She will also need a gastroscopy and colonoscopy, but can not undergo the sedation at the moment as her oxygen levels may drop too much (sedation reduced the rate you breath at).

Mum has been staying with us since her discharge from hospital a week ago and now the hard works starts in getting all the help and financial assistance we can.
My mum lives on her own and this will not change until she needs round the clock nursing care, as she will not be looked after in either my brothers or my home (her choice and one that I am relieved immensely by).

We always thought that it would be her rheumatoid arthritis which caused her to be unable to manage the stairs, so last year when an endowment matured she had a downstairs wet room installed, which will be a godsend, however, we still need to arrange to get 2 stair lifts installed.

Why two you ask, well mum lived in an old victorian terrace and the bathroom is set on a landing between two staircases, as it was an add on at the rear of the house along with the kitchen and the levels are different to the bedrooms.

I also need to arrange a wheel chair, as up to now we have always borrowed one when necessary.

Someone to come in and do the cleaning and the ironing in the short term.  Once Mini is at school full time in September then I will do this on a daily basis, however, mum is going to need some help and assistance in getting up and dressed for a little while and also in cooking meals etc.

It is so, so hard and makes me really sad.  I never thought I would be responsible for looking after my mum at 36 with a nearly 5 year old and a 3 year old to look after as well.  In addition to this I am aware that it is important that I continue to work on my relationship with MadDad too.


Yes I am feeling it, the pressure, this is my mum, the woman who brought me up, we may not always see eye to eye, but I love her and can not bear the thought of losing her.

Yes I am under pressure, I want her to live as independant a life as she can, I want her to enjoy her life and I want the grandchildren to have happy memories of their time with her.

Yes I am under pressure, social care teams are woefully understaffed and getting any support is hard.

But I am also under the opinion that you are only given the things you can handle to deal with and as a family we will all get through this.  My Brother has been fantastic, visiting every night even though he really needs to be in the club.
MadDad is being a star as always, giving me the space and time I need to blog, be with the children and an ear to moan into and arms to fall into.
I am not looking for sympathy, as you know that is not my thing, but a little understanding now and then, whilst I work at getting the balance right for all involved and yes I may be under pressure, but I do have my mother to celebrate mothers day with this Sunday and at the moment, after the few weeks we have had that is all I could have asked for.


This post was inspired by prommt 5 What is making you feel under pressure right now?


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Comments (17)

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Sounds so tough, I'm sorry. My dad's mum had emphysema, and us grandchildren still enjoyed many happy years with her after she was diagnosed. I remember how sick she got though (never lost her sense of humor, mind), she lived with my dad's sister and family, and we would go and stay for two weeks every summer to give them a break. Virtual hugs.
Big hugs. It is tough tough tough. I hope she starts to feel better and is able to enjoy her independence. In the meantime, I LOVE your attitude towards her, mothers day and her role as a Grandmother. You are one amazing lady. x
Your mum is very poorly & I hope she can remain in her home with help for all your sakes.
At least this will put the boys off ever smoking !
I know you don't want sympathy so just saying thinking of you & hope you don't get too drained.
Don't forget Sunday is about you too - you are a Mother ! Last year I had a horrible day so we are going todo something nice this year. I don't want presents - Mothering Sunday is not about presents - just a small bunch of daffs & loving gestures.
I've sent my mum some Narcissus from the Scilly Isles and we will see her next weekend for her oldest friend's 80th - & mum coming back here for a couple of nights.

Glad your brother has been a great help
Take care xx
Its so hard, Hugs! Dont forget that Sunday is also for you xx
Don't forget in the midst of all the chaos and hard work to make some you time even if it's just a peaceful half hour in the bath. We all send you good thoughts. x
It sounds like you have a good support network around you. It is a hard thing to do, caring for someone who's ill all the time even with good support. It is as unrelenting as kids but with the added concern of the illness - and I know you have Mini and Maxi to look after too. I know it will be hard to find some true downtime so my advice would be to make sure when you do get a second to yourself, use it to give your brain a break. Either read something good, watch a programme you like, or write a blog post. Don't censor yourself, it's important to get your feelings down on paper. If you try and hold them all in right now they can be like a poison that makes everything twice as hard to deal with.
Oh honey. Now I feel like my post is so flippant and pathetic. This is real pressure and I really do feel for you. I do hope you continue to manage and that your lovely family continues to support you and your Mum. x
Gosh that really is a tough one. I'm the same age as you and I couldn't imagine having to take that strain as well. You clearly have a lot on your plate. I hope you are able to continue working together as a family, that has to be one positive in all this. xx
Big hugs from me also. I've been experiencing something similar with my Mum but my kids are older. I understand the pressure you feel. Please, please make sure that you get some time to breathe and relax for yourself. Deal? Lots of virtual hugs..xx
Big hugs, you're a strong lady and whilst it is going to be difficult you will manage, and manage very well. Have a nice day on Sunday. xx
Gosh, yours is the second post of Josie's WW I have read today and I am feeling so sad. I agree with you that we're given tasks to deal with that we are up to handling and so I applaude you and wish you a wonderful Mother's Day xx
My heart really goes out to you. My mum was diagnosed with emphysema about 20 yrs ago and it's a heartbreakingly awful disease. I hope you remain strong and you get help quickly for all your sakes x
I can really empathise with you. Sometimes we ( as mums and daughters), are pulled in so many directions. I applaud your attitude and send you a big virtual hug x
I hope you begin to find a balance soon.
My Gran lived with us for 12 years while she suffered with dementia and while my mum found it very trying at times she does say that she wouldn't have had it any other way. It was worth all the stress to be able to make her life easier.
An inspirational post though, I'm sure it will give others in a similar situation some strength too.
Aww chick this is really, really tough.

It's ok to say that it is hard, it is ok to say you feel overwhelmed with it all. Doesn't mean you love your mother any less so I hope you will use this virtual network to share how you're feeling as you take all this onto your shoulders.

You are one of the strongest ladies I know in this blogging world of ours so I have every faith you will cope with it all beautifully, supported by those that love you.

I'm so sad that your mum is struggling so much. My mum is a social worker with elderly people and I know how IMPOSSIBLE it is at the mo to get the help you need - they have almost zero funding, it's a total nightmare.

Thinking of you and sending much love xx
Oh lovely, what a lot for you to deal with. I'm so glad your Mum has kids who care so much for her. I worry about those in our communities who do not. Hope you find a balance that works and fingers crossed your Local Authority is one of those who provide proper support and care for people like your mum in her own home.

MD xx
Huge Hugs.

Can't even imagine how hard it must be to get on with everything you need to do right now - you are brilliant for doing it.
Hope you have a great Mother's day. Both of you xx

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